Training Needs of Professionals Who Serve People With I/DD and Mental Health Needs and Their Families

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Up to 40% of people with intellectual and developmental disabilities (I/DD) experience co-occurring mental illness. Despite the prevalence of mental health needs among people with I/DD, little is known about the best approaches for supporting the needs of people with I/DD and co-occurring mental health challenges and their families. This uncertainty has led to the dependence on outdated and potentially bad approaches to mental health care, such as seclusion, restraint, and psychotropics, which may cause individuals with dual diagnosis an increase in their struggles with poor mental health, as well as a lack of family support resources and services available for people and their families.

Previously, The Arc explored the family support needs of families that include a person with the dual diagnosis of I/DD and mental health needs. One critical recommendation coming from this investigation was the need for more training around I/DD and mental health for disability, mental health, and education professionals. In 2019 as part of its work as an FSRTC partner, The Arc conducted focus groups that probed the training needs of and barriers that disability, mental health, and education professionals face when serving people with I/DD and co-occurring mental health challenges. The focus of these groups included:

  • Discussing and better understanding the training needs and challenges that disability, mental health, and education professionals face when serving people with I/DD and co-occurring mental health challenges and their families;
  • Identifying key topics and issues that professionals should be trained on regarding serving people with I/DD and mental health challenges; and
  • Developing recommendations on the best opportunities for training format and delivery across all professionals.

2010 FINDS National Survey Family and Individual Needs for Disability Supports: Technical Report

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Most of the growth in services in the last half century has been to support people living in their own or a family home. However, between 2009 and 2011, the economic difficulties of the prolonged national recession began to slow the growth or in some places to result in actual reductions in publicly funded supports to families throughout the United States. Family caregivers play critically important roles in supporting the well-being of people with ID/DD. This is true for family members who are the primary caregiver as well as for those whose family member with ID/DD live in their own homes or in supported residential settings. As our society continues to depend on the active engagement of family caregivers for the support of individuals with ID/DD, it is important to understand and respond to the needs of those caregivers. In 2010 The Arc of the United States conducted a national internet survey that aimed to capture the perspectives of people with ID/DD and their family caregivers. The Family and Individual Needs for Disability Supports (FINDS) survey focused on issues including educational, housing, employment and support needs of people with ID/DD and their families. Family caregivers in 2010 reported substantial ongoing challenges to providing lifelong supports to family members with intellectual or developmental disabilities.

FINDS Community Report Data Tables

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As our society continues to depend on the active engagement of family caregivers for the support of individuals with ID/DD, it is important to understand and respond to the needs of those caregivers.

The 2010 Family and Individual Needs for Disability Supports (FINDS) survey focused on issues including educational, housing, employment and support needs of people with ID/DD and their families. Family caregivers in 2010 reported substantial ongoing challenges to providing lifelong supports to family members with intellectual or developmental disabilities. View the Data Tables to get a more robust analysis of the data on family caregivers collected throughout the survey.